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Springfield baby loses battle to SMA
lpozen@kspr.com; bfoster@kspr.comSPRINGFIELD, Mo. - A ten-month old baby in the Ozarks lost his battle to the most severe cause of infant death. Logan Ruth died early Saturday morning in the arms of his parents. "We want to remember his happy face and he wouldn't want us to cry.... -
One man's extraordinary walk across America
Staff WriterSEELEY — Joe “Tiger” Patrick has been carrying across the country the names and faces of the 6,655 service men and women killed in Iraq and Afghanistan on a 200-square-foot banner. He began his walk April 26 from Coronado Beach and...Tags: Iraq War (2003-2011), Google Inc., Unrest, Conflicts and War, Iraq, Veterans Affairs
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Blindness looms, but life full for Ledyard girl
The Day, New London, Conn.One week before the spring recital, seven young ballerinas stand in formation, awaiting their cue. In the back, Sofia Priebe -- at 4 feet, 8 inches -- is the second-tallest girl in her class at Mystic Ballet. Where the others stare measuredly ahead,...Tags: Dance, Science and Technology, Entertainment Events, Ophthalmology, Ledyard
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Kindness for Katelynn event upcoming
Portsmouth Daily Times, OhioThe family of a severely ill child will benefit from the proceeds of a motorcycle run Sunday, June 9 at Spartan Municipal Stadium in Portsmouth. Kindness for Katelynn was a big success last year and organizers are hoping for an even larger turnout this...Tags: Kidney Disease, Diseases and Illnesses, Respiratory Disease, Dialysis
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Family plans event to shed light on rare genetic condition
The Buffalo NewsViolet Bystrak has had a big year. The Orchard Park girl, now 3 1/2 years old, has made significant strides since she was featured last June in a story in The Buffalo News about her condition, called Prader-Willi syndrome. Violet can now walk. That's...Tags: Symptoms, Obesity, Weight, Medical Research
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Glastonbury High Athlete Defies Odds In Battling Cystic Fibrosis
The Hartford CourantGLASTONBURY — A few years ago, Glastonbury lacrosse coach Kris Cofiell was wondering why one of her players, Courtney Peterson, was helping out with a fundraiser for cystic fibrosis. "Her [older] sister said, 'Courtney has it,'" Cofiell recalled...Tags: Field Hockey, Chemical Industry, Pharmaceuticals, Diseases and Illnesses, Cystic Fibrosis Foundation
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Should seniors qualify as living donors?
Robert Brown was healthy, willing and a good match: So why not give a kidney to his wife, who otherwise would need dialysis? There was just one potential obstacle: Brown was 74, an age once unthinkable for a kidney donor. For this retired psychologist...
Tags: General Practitioners, Kidney Disease, Mayo Clinic, Hospitals and Clinics, Diseases and Illnesses
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U.S. FDA approves Raptor's drug for nephropathic cystinosis
ReutersWASHINGTON, April 30 (Reuters) - The U.S. Food and Drug Administration has approved an experimental drug from Raptor Pharmaceutical Corp to treat a rare genetic disorder that can cause irreversible tissue damage, organ failure and premature death. The...Tags: Food and Drug Administration
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Fundraiser to benefit Bluffton student with mitochondrial disease
The Island Packet OnlineThe parents of Ellie Kovalcik see hope on the horizon, but know they're working on borrowed time. The Bluffton Elementary School fifth-grader has a chronic genetic disorder that leaves her unable to walk, talk, eat or breathe on her own. She has...Tags: Chemical Industry, Research, The Ohio State University, Medical Research, Health and Safety at School
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Hospital ceremony in Springs helps parents mourn, heal
The Gazette (Colorado Springs, Colo.)Parents and family members gathered Sunday to mourn 24 cherished sons and daughters, gone too soon. Memorial Hospital and Children's Hospital Colorado held their 15th annual interfaith remembrance service Sunday for families who've lost children through...Tags: General Practitioners, Hospitals and Clinics, Human Interest, Death and Dying Customs, Arts and Culture
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Hospitals' proposed affiliation with Catholic systems opposed
Seattle TimesSedro-Woolley, a tiny Skagit County town in the Cascade foothills, was formed in 1898 from a merger of two rival towns -- one named for the giant cedar trees that once loomed overhead, and the other for an ambitious railroad developer. So there's a...Tags: General Practitioners, Family Planning, Ethics, Separation of Church and State, Rome (Italy)
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Many support Lee's first Great Strides Walk
The Sanford Herald, N.C.Whether they were alone, with family or with a larger support group, hundreds of people came to Kiwanis Park in Sanford Saturday morning with one goal in mind: helping those who suffer from cystic fibrosis. There were massages, hot dogs, a silent...Tags: Sickle Cell Disease, Asthma, Diseases and Illnesses, Cystic Fibrosis Foundation, Diabetes
May 12, 2013
|Story| KSPR-TV
May 7, 2013
|Story| Imperial Valley Press Online
May 12, 2013
|Story| McClatchy-Tribune
May 9, 2013
|Story| McClatchy-Tribune
May 9, 2013
|Story| McClatchy-Tribune
Apr 14, 2013
|Column| Hartford Courant
Apr 10, 2013
|Story| Chicago Tribune
Apr 30, 2013
|Story| Reuters
Apr 29, 2013
|Story| McClatchy-Tribune
Apr 29, 2013
|Story| McClatchy-Tribune
Apr 28, 2013
|Story| McClatchy-Tribune
Apr 28, 2013
|Story| McClatchy-Tribune
Original site for Genetic Condition topic gallery.
