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Blindness looms, but life full for Ledyard girl
The Day, New London, Conn.One week before the spring recital, seven young ballerinas stand in formation, awaiting their cue. In the back, Sofia Priebe -- at 4 feet, 8 inches -- is the second-tallest girl in her class at Mystic Ballet. Where the others stare measuredly ahead,...Tags: Healthcare Provider, Television Industry, Networking, Ophthalmology, Habitat for Humanity International
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Kindness for Katelynn event upcoming
Portsmouth Daily Times, OhioThe family of a severely ill child will benefit from the proceeds of a motorcycle run Sunday, June 9 at Spartan Municipal Stadium in Portsmouth. Kindness for Katelynn was a big success last year and organizers are hoping for an even larger turnout this...Tags: Diseases and Illnesses, Respiratory Disease, Kidney Disease, Dialysis
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Family plans event to shed light on rare genetic condition
The Buffalo NewsViolet Bystrak has had a big year. The Orchard Park girl, now 3 1/2 years old, has made significant strides since she was featured last June in a story in The Buffalo News about her condition, called Prader-Willi syndrome. Violet can now walk. That's...Tags: Medical Research, Symptoms, Weight, Obesity
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One man's extraordinary walk across America
Staff WriterSEELEY — Joe “Tiger” Patrick has been carrying across the country the names and faces of the 6,655 service men and women killed in Iraq and Afghanistan on a 200-square-foot banner. He began his walk April 26 from Coronado Beach and...Tags: Iraq, Diseases and Illnesses, Washington, DC, Iraq War (2003-2011), Afghanistan
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U.S. FDA approves Raptor's drug for nephropathic cystinosis
ReutersWASHINGTON, April 30 (Reuters) - The U.S. Food and Drug Administration has approved an experimental drug from Raptor Pharmaceutical Corp to treat a rare genetic disorder that can cause irreversible tissue damage, organ failure and premature death. The...Tags: Food and Drug Administration
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Fundraiser to benefit Bluffton student with mitochondrial disease
The Island Packet OnlineThe parents of Ellie Kovalcik see hope on the horizon, but know they're working on borrowed time. The Bluffton Elementary School fifth-grader has a chronic genetic disorder that leaves her unable to walk, talk, eat or breathe on her own. She has...Tags: Health and Safety at School, Research, Medical Research, The Ohio State University, Chemical Industry
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Hospital ceremony in Springs helps parents mourn, heal
The Gazette (Colorado Springs, Colo.)Parents and family members gathered Sunday to mourn 24 cherished sons and daughters, gone too soon. Memorial Hospital and Children's Hospital Colorado held their 15th annual interfaith remembrance service Sunday for families who've lost children through...Tags: Death and Dying Customs, General Practitioners, Human Interest, Hospitals and Clinics, Arts and Culture
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Ohio girl, 8, receives kidney transplant from former teacher
CLEVELAND (AP) - An Ohio girl is recovering after getting a critical kidney transplant - with the organ donated by her former kindergarten teacher. Nicole Miller - an 8-year-old first-grader at Mansfield Christian School - got the kidney last week...Tags: Education, Teachers, Teaching and Learning, Preschools, Schools
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Many support Lee's first Great Strides Walk
The Sanford Herald, N.C.Whether they were alone, with family or with a larger support group, hundreds of people came to Kiwanis Park in Sanford Saturday morning with one goal in mind: helping those who suffer from cystic fibrosis. There were massages, hot dogs, a silent...Tags: Cystic Fibrosis, Diseases and Illnesses, Asthma, Diabetes, Cystic Fibrosis Foundation
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Hospitals' proposed affiliation with Catholic systems opposed
Seattle TimesSedro-Woolley, a tiny Skagit County town in the Cascade foothills, was formed in 1898 from a merger of two rival towns -- one named for the giant cedar trees that once loomed overhead, and the other for an ambitious railroad developer. So there's a...Tags: Values, Finance, General Practitioners, Health Treatments, Pharmaceuticals
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Video helps build support for East High prom king candidate with Down syndrome
The Wichita EagleKurtis Tinius looks dapper in his suit and tie, passing out stickers promoting his prom king candidacy at East High School. He's not shy about spreading the word: He wants Saturday's crown. Despite speech that's a little hard to understand, he's a...Tags: Education, Teachers, Elections, Teaching and Learning, Students
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Glastonbury High Athlete Defies Odds In Battling Cystic Fibrosis
The Hartford CourantGLASTONBURY — A few years ago, Glastonbury lacrosse coach Kris Cofiell was wondering why one of her players, Courtney Peterson, was helping out with a fundraiser for cystic fibrosis. "Her [older] sister said, 'Courtney has it,'" Cofiell recalled...Tags: Lacrosse, Cystic Fibrosis, Diseases and Illnesses, Pharmaceuticals, Field Hockey
May 12, 2013
|Story| McClatchy-Tribune
May 9, 2013
|Story| McClatchy-Tribune
May 9, 2013
|Story| McClatchy-Tribune
May 7, 2013
|Story| Imperial Valley Press Online
Apr 30, 2013
|Story| Reuters
Apr 29, 2013
|Story| McClatchy-Tribune
Apr 29, 2013
|Story| McClatchy-Tribune
Apr 29, 2013
|Story| KY3-TV
Apr 28, 2013
|Story| McClatchy-Tribune
Apr 28, 2013
|Story| McClatchy-Tribune
Apr 27, 2013
|Story| McClatchy-Tribune
Apr 14, 2013
|Column| Hartford Courant
Original site for Genetic Condition topic gallery.
