Hundreds walk to raise awareness for ALS

Published: Sep. 29, 2018 at 6:36 PM CDT
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Saturday morning hundreds gathered to walk, raise awareness and money for ALS, a disease that attacks nerve cells in the brain, at Jordan Valley Park. More than $94,000 was raised for research, medical equipment and other needs.

Lea Ann Nacy lost her son, Stephen, to ALS in Dec. 2016. He was only 15-years-old.

"It was earth-shattering," Nacy said.

They started to notice he had difficulty serving a tennis ball when he was 14, in Jan. 2016. Within 11 months he lost muscle function in his arms and legs, his ability to breathe and swallow were also compromised. Nacy says doctors were able to diagnose the disease through genetic testing.

"He never gave up hope, he prayed for a miracle," Nacy said. "He truly felt he could be the first person to beat ALS."

Nacy along with so many other families and friends walk and raise money for a cure.

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