CMNH Miracle Child: Meet Stella Craig

Published: Nov. 28, 2017 at 10:10 AM CST
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It is Miracle Week on KY3 and KSPR: when we get to show you some of the people you can help with a donation to Children's Miracle Network Hospitals. Stella Craig is one of those people. She's a little girl who reminds us that life is made up of moments, both scary and inspiring.

There's nothing like hearing a child laugh. It's an amazing moment. But, for Kacie Craig, hearing her daughter, Stella, giggle means so much more.

"It makes my heart explode every time I hear her laugh," says Kacie. "You cherish every moment, knowing that anything could change in a moment's notice. Just this weekend, she was a happy-go-lucky girl, and next thing you know, she's seizing for 30 minutes, we had to give three doses of rescue meds and call 911."

Stella has a rare genetic disorder that causes low muscle tone, vision impairment, hearing loss, a movement disorder, and lots of scary moments: seizures that can last half-an-hour. Kacie said, "We just were watching our daughter waste away, seizure after seizure, and didn't know what to do."

--Or, where to turn for help in covering the astronomical costs of Stella's care. Their insurance doesn't cover everything, and because Kacie and her husband have good jobs, many programs denied them. She says, "You hate to not see your child develop, because you can't afford the therapy."

But after so many "No's," Children's Miracle Network Hospitals said, "Yes." They help Stella with medication, her almost daily therapy, and her trips to the hospital in Saint Louis.

"You just assume that you're going to have a healthy child, and when you find out quickly that's not the case, and it's going to be a lifelong thing, it gets real scary real fast," said Kacie. "We were scared we were going to lose our house... and, I don't know what we would've done without them."

But now, the Craigs are counting milestones and moments, happy ones, thanks to Children's Miracle Network Hospitals, and donations from people like you.

Kacie says, "You literally are changing someone's life: someone who may be like us, who's been told, 'No' so many times. Children's Miracle Network will say, "Yes."

You can go right here to make a donation...